{"id":1084,"date":"2016-04-24T21:29:02","date_gmt":"2016-04-25T01:29:02","guid":{"rendered":"https:\/\/eiq.knx.mybluehost.me\/website_78d26930\/bigdatacourse?p=1084"},"modified":"2016-04-24T21:29:02","modified_gmt":"2016-04-25T01:29:02","slug":"the23andme-and-public-good","status":"publish","type":"post","link":"https:\/\/jjsylvia.com\/bigdatacourse\/the23andme-and-public-good\/","title":{"rendered":"The23andMe and Public Good"},"content":{"rendered":"<p>The company that I chose is <a href=\"https:\/\/www.23andme.com\">The23andMe<\/a>. I Googled companies that use big data for public good and there was an<a href=\"http:\/\/www.computerworld.com\/article\/2880192\/a-lot-of-private-sector-data-is-also-used-for-public-good.html\"> article <\/a>written about their public good initiatives. The companies main goal is to, &#8220;help people access, understand and benefit from the human genome.&#8221; They sell at home genetic testing kits, which sell for about $200 a piece. The individual benefit of these tests is to gain an understanding of your health, traits and ancestry, which can be beneficial in understanding whether you are a carrier for diseases like cystic fibrosis, sickle cell, etc. These results can also be beneficial in understanding diet and exercise, which can vary depending upon the individual. The public good aspect of the company is that with the consumers consent they donate the genetic information to research. Some examples of this include drug companies that are working to find cures to Crohn&#8217;s and Parkinson&#8217;s disease. Additionally they use the information to recruit patients for research trials who may perfectly reach the guidelines for the trial. This data is coming from people&#8217;s personal tests. The company is for profit, and was founded in 2006. The company is well established and has over 1 million genotyped customers of which 80% have opted to participate in research. Probably 75% of their company is dedicated to the public good as they donate all the consented information they obtain to research.<\/p>\n<p>&nbsp;<\/p>\n<p>What I also really liked about their company is that they have an accompanying app that can help individuals manage their diet and exercise, track their heart rate, and contribute research studies on the go. This just amplifies the amount of data they can obtain from one person and helps individuals know what to do with their results. However, I think the nature of this company comes with a lot of ethical concerns especially with the addition of the app. Everyone can benefit from increased genetic research; however, individuals who choose to share their data, share A LOT of data with any number of third parties. I&#8217;m not sure I would feel comfortable sharing all of my data. Ironically one of their core values is, &#8220;We believe that your genetic information should be controlled by you,&#8221; but how much is really controlled by the individual if the individual chooses to share their information with any number of third parties? On the other hand, if individuals choose not to contribute to research then the public good aspect of the company ceases to exist.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>The company that I chose is The23andMe. I Googled companies that use big data for public good and there was an article written about their public good initiatives. The companies main goal is to, &#8220;help people access, understand and benefit from the human genome.&#8221; They sell at home genetic testing kits, which sell for about<br \/><a class=\"moretag\" href=\"https:\/\/jjsylvia.com\/bigdatacourse\/the23andme-and-public-good\/\">+ Read More<\/a><\/p>\n","protected":false},"author":28,"featured_media":1085,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-1084","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/jjsylvia.com\/bigdatacourse\/wp-json\/wp\/v2\/posts\/1084","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jjsylvia.com\/bigdatacourse\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jjsylvia.com\/bigdatacourse\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jjsylvia.com\/bigdatacourse\/wp-json\/wp\/v2\/users\/28"}],"replies":[{"embeddable":true,"href":"https:\/\/jjsylvia.com\/bigdatacourse\/wp-json\/wp\/v2\/comments?post=1084"}],"version-history":[{"count":1,"href":"https:\/\/jjsylvia.com\/bigdatacourse\/wp-json\/wp\/v2\/posts\/1084\/revisions"}],"predecessor-version":[{"id":1086,"href":"https:\/\/jjsylvia.com\/bigdatacourse\/wp-json\/wp\/v2\/posts\/1084\/revisions\/1086"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/jjsylvia.com\/bigdatacourse\/wp-json\/wp\/v2\/media\/1085"}],"wp:attachment":[{"href":"https:\/\/jjsylvia.com\/bigdatacourse\/wp-json\/wp\/v2\/media?parent=1084"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jjsylvia.com\/bigdatacourse\/wp-json\/wp\/v2\/categories?post=1084"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jjsylvia.com\/bigdatacourse\/wp-json\/wp\/v2\/tags?post=1084"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}